A six-month feasibility study evaluated patients’ ongoing compliance in wearing digital health technology in order to capture continuous data remotely as well as changes often missed in between hospital visits.

Abstract Background As part of a late onset GM2 gangliosidosis natural history study, digital health...

Together in Worship. The Music of Lent

Friday, February 21, 2020 at 7:30pm...

Blu Genes Afternoon Tea

Blu Genes is grateful to our Sponsors, supporters, friends and family for making our Afternoon...

Tay Sachs Sees Hope in First Gene Therapy Clinical Trial

Blu Genes Foundation Gives UMMS $1.4M(USD) to Bring Tay-Sachs Gene Therapy Approach to Clinical Trial...