Behind every breakthrough in rare disease research is a community of people who choose to show up, speak up, and support the work that changes lives.
Supporters like Alex Raponi and Mary DeCaria remind us that progress isn’t just made in labs—it’s built through conversations, advocacy, and a shared belief that families deserve hope. Their words reflect what drives Blu Genes forward.
Thank you to everyone who gives their voice, time, and generosity to this mission. Together, we’re creating the ripple effect that leads to real change.
#RareDiseaseResearch #AdvocacyInAction #BluGenesFdn #GeneTherapy #HopeForFamilies
Jan 8
This year reminded us how powerful it is when people come together with a shared purpose. From heartfelt conversations to packed rooms filled with energy and generosity, every moment helped fuel the work that’s changing the future of rare disease.
Because of supporters like you, research moved forward, families felt seen, and real progress was made. Thank you for being part of the momentum that made this past year matter.
Join us to make this year even greater.
#RareDiseaseResearch #CommunityImpact #GeneTherapy #BluGenesFdn #MakingADifference
Jan 6
Your support is transforming what’s possible for families affected by rare genetic disorders. 💙
Since 2017, Blu Genes donors have helped fuel scientific firsts, launch new research programs, and accelerate global partnerships that move lifesaving treatments closer to reality. Swipe to read more about our groundbreaking progress.
Thank you for your continued support. We look forward to the impact we will make together in the year ahead.
#RareDiseaseResearch #GeneTherapy #BluGenesFdn #ScientificBreakthroughs #HopeThroughResearch
Jan 2
In moments of quiet love like this, the importance of our mission becomes so clear. 💙
Every gift helps advance gene therapy research that gives families hope for healthier tomorrows.
This season, please consider supporting the breakthroughs that could change a child`s future. Donations made before midnight tomorrow will receive a 2025 charitable tax receipt.
Together, we can bring more moments like this into the world.
#BluGenesFdn #GeneTherapy #RareDiseaseResearch #HopeForFamilies #GiveHope
Dec 30
In this season of giving, we’re reminded how powerful our community is, and what’s possible when we come together. Every donation, partnership, and shared effort help drive research and bring real hope to families affected by rare disease.
Thank you for being part of our mission, and turning generosity into hope 💙
See the impact of your support in our 2025 Annual Report at blugenes.ors (link in bio)
Dec 25
A breakthrough in motion 💙
Thanks to support from Blu Genes, experts at SickKids are seeing gene editing reach the brain and improve Tay-Sachs symptoms in preclinical research models for the first time ever. Each discovery brings us closer to future treatments — and renewed hope for families affected by rare disease.
#BluGenesFoundation #TaySachs #GeneTherapy #RareDiseaseResearch #HopeForACure
Dec 23
There’s still time to make your impact this year. 💙 Every dollar brings us closer to life-changing treatments for children and families affected by rare genetic diseases.
For donations to qualify for a 2025 tax receipt, please ensure your gift is received by midnight on December 31.
#BluGenesFoundation #YearEndGiving #RareDiseaseResearch #HopeThroughScience
Dec 18
Thanks to your generous support, Blu Genes is driving real progress in advancing research for rare childhood genetic disorders. This holiday season, we’re celebrating the breakthroughs you’ve helped make possible—from advancing the first-ever Tay-Sachs clinical trial to supporting world-leading gene-editing research at SickKids. Together, we’re turning hope into action for families who need it most.
#BluGenesFdn #RareDiseaseResearch #GeneTherapy #HopeInAction
Dec 16
Blu Genes began from a personal mission, Siena was diagnosed with Tay-Sachs disease in her first year of life.
Through the dedication of her family and the entire Blu Genes community her legacy has become a force for hope, driving research, inspiring action, and giving other children the chance to live the future they deserve.
Every step forward is for children like Siena who need our help to bring research to light and hope to their lives.
#BluGenesFdn #GeneticDisorder #HopeThroughResearch #RareDiseaseAwareness #GeneTherapy
Dec 11
Every breakthrough begins with hope. 💙
Thanks to the generosity of our community, Blu Genes has raised over $4 million to advance gene therapy research for rare genetic disorders. Each milestone brings us closer to a future where every child has the chance to move, grow, and thrive.
Together, we’re turning hope into healing, one discovery at a time.
#BluGenesFdn #HopeThroughResearch #RareDiseaseAwareness #GeneTherapy #MakingADifference
Dec 9
Behind every breakthrough are the families, researchers, and supporters who make it possible. 💙
This year’s Blu Genes Annual Report shares the stories of resilience, discovery, and hope that continue to drive our mission forward.
Read their stories and learn how you can make a difference at blugenes.org (link in bio).
#BluGenesFdn #RareDiseaseAwareness #StoriesOfHope
Dec 6
Every dollar raised brings us closer to a cure. 💙
From Velo Blu to Tea for Blu and community-led initiatives, your generosity has powered groundbreaking gene therapy research and created lasting impact for families facing rare genetic conditions.
Discover the difference you’ve made in our 2025 Annual Report, now live at blugenes.org (link in bio).
#BluGenesFdn #HopeForRare #TogetherForACure
Dec 5
Groundbreaking research is bringing new hope to families affected by Tay-Sachs disease. 💙
In this year’s Blu Genes Annual Report, learn how scientists at SickKids and UMass are advancing gene therapy—proving that progress is possible when passion meets purpose.
Visit blugenes.org (link in bio) to explore the discoveries shaping the future of rare disease research.
#BluGenesFdn #RareDiseaseResearch #HopeForACure #GeneTherapy
Dec 4
Today is Giving Tuesday, a global day of generosity and hope. 💙
Every donation made today helps drive gene therapy research forward, bringing us closer to life-changing treatments for children and families living with rare genetic diseases.
Your support fuels discovery. It brings comfort to families. It turns possibility into progress.
Give hope. Support research. Help make a cure possible.
#GivingTuesday #BluGenesFdn #HopeThroughResearch #RareDiseaseAwareness #GeneTherapy
Dec 2
Giving Tuesday is just four days away. 💙
We’re getting ready to join a global movement of generosity that turns hope into action for children and families affected by rare genetic diseases. Every gift brings us closer to breakthroughs in gene therapy and gives families the chance to dream beyond diagnosis. Together, we can make a lasting impact.
Donate today at the link in our bio.
#GivingTuesday #BluGenesFdn #HopeThroughResearch #GeneTherapy #RareDiseaseAwarenes
Nov 28
Behind every kilometer is a mission 🚴️
Our riders and committee members share what motivates them to support Velo Blu year after year, and why you should be part of it.
Join us as we continue to drive Blu Genes’ mission forward. Ride with purpose. Ride for rare disease research. 💙
#VeloBlu #BluGenesFoundation #RideForHope #RareDiseaseResearch #GeneTherapy
Nov 25
From the first pedal to the final toast, Velo Blu 2025 was a ride powered by purpose. 💙
Riders, families, sponsors, and friends came together with one goal in mind: to bring
hope to those living with rare diseases.
Thanks to your support at this year`s Velo Blu, we have reached a remarkable milestone
— more than $4 million raised to date for the Blu Genes Foundation!
Together, we’re fueling research that’s changing the future for families affected by rare
disease.
Thank you to Indigo Events for capturing the energy and heartfelt moments of our event so beautifully.
🎥: @indigoevents.ca
Nov 13
Children like Musa, who live with PMLD—a rare genetic disorder that affects the brain and spinal cord—face immense challenges because their nerve signals can’t properly connect.
But thanks to groundbreaking research from Dr. Kleopa in Cyprus, Dr. Esteves in the USA, and the PMD Foundations around the world, hope is closer than ever. Together, we’re raising $1.7 million to advance a promising gene therapy that could restore myelin and transform lives like Musa’s.
With your support, we can help turn that hope into a cure.
#BluGenesFdn #GeneticDisorder #HopeForACure #RareDiseaseAwareness
Nov 11
One of the many activities to select for your day at Velo — a chance to sip, paint and unwind in the vineyards of Peller Estates Winery. 🎨 Surrounded by friends, laughter and the beauty of Niagara -on-the-Lake, it was a reminder that every part of Velo Blu is about connection, joy, and making a difference.
Join us in 2026 to ride, paint, sip and celebrate. 💙
#BluGenesFdn #VeloBlu2025 #SipAndPaint #RareDiseaseResearch #CreativityForACause
Nov 6
This year’s Experience Niagara at Velo Blu was nothing short of incredible. Participants enjoyed a scenic, leisurely journey through Niagara’s stunning wine country — with curated stops at three local wineries for tastings and unforgettable views.🍷 Thank you to all our participants who helped drive our mission forward — supporting rare disease research in a powerful way.
Cheers to an amazing day — and we’ll see you at Velo Blu 2026!
#VeloBlu #BluGenesFoundation #RideForHope #RareDiseaseResearch #GeneTherapy
Nov 4
